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Cultural Aspects of Hospice

Selected and compiled by Jacquelyn Coughlan, M.S., M.L.S.

Aswad, S., Souqiyyeh, M. Z., et al. (1992, October). Public attitudes toward organ donation in Saudi Arabia. Transplantation Proceedings, 24(5), 2056-2058

Atigetchi, D. (1996). The discussion on human organ transplantation in the Islamic states. Medicine and Law, 15(4), 691-694

Becker, R. (1999). Teaching communication with the dying across cultural boundaries. British Journal of Nursing, 8(14), 938-942.

Born, W., Greiner, K. A., Sylvia, E., Butler, J., & Ahluwalia, J. S. (2004). Knowledge, attitudes, and beliefs about end-of-life care among inner-city African Americans and Latinos. Journal of Palliative Medicine, 7, 247-256.

Braun, K. L., & Nichols, R. (1997, July/August). Death and dying in four Asian American cultures: A descriptive study. Death Studies, 21(4), 327-359.

Briggs, L. A. (2002). End-of-life decision-making: Having those difficult decisions. The American Journal for Nurse Practitioners, 6, 9-12.

Buckland, P. (1997). Hospice in Southern Africa. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Burn, G. L. (1997). Development of palliative care in India. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Chan, A., & Woodruff, R. K. (1999). Comparison of palliative care needs of English- and non-English-speaking patients. Journal of Palliative Care, 15, 26-30.

Chow, A. Y. M., Chan, C. L. W., Ho, S. M. Y., Tse, D. M. W., et al. (2006). Qualitative study of Chinese widows in Hong Kong: Insights for psycho-social care in hospice settings. Palliative Medicine, 20(5), 513-520.

Chung, L. S. T. (1997). The Hospice movement in a Chinese society--a Hong Kong experience. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Clinical governance and palliative care: A question of synergy. (2000, January). International Journal of Palliative Nursing, 6(1), 43-45.

Connors, R. B., Jr., & Smith, M. L. (1996, July-August). Religious insistence on medical treatment: Christian theology and re-imagination. Hastings Center Report, 26(4), 23-30.

Cort, M. A. (2004). Cultural mistrust and use of hospice care: Challenges and remedies. Journal of Palliative Medicine, 7(1), 63-71.

Costello, J., & Christoforou, C. (2001, June). Palliative care in a Mediterranean culture: A review of services in the Republic of Cyprus. International Journal of Palliative Nursing, 7(6), 286-289.

Davis, A. J., Konishi, E., & Mitoh, T. (2002, December). The telling and knowing of dying: Philosophical bases for hospice care in Japan. International Nursing Review, 49(4), 226-233.

Doorenbos, A. Z. (2003). Hospice access for Asian Indian immigrants. Journal of Hospice and Palliative Nursing, 5, 27-33.

Doorenbos, A. Z., & Schim, S. M. (2004). Cultural competence in hospice. American Journal of Hospice & Palliative Care, 21, 28-32.

Ekblad, S., Marttila, A., & Emilsson, M. (2000). Cultural challenges in end of life care, reflections from focus groups' interviews with hospice staff in Stockholm. Journal of Advanced Nursing, 31, 623-630.

Field, A., Maher, P., & Webb, D. (2002). Cross cultural research in palliative care. Social Work in Health Care, 35(1-2), 523-543.

Gallagher, C. (1998, March). Religious outreach for organ and tissue donation. Journal of Transplant Coordination, 8(1), 60-62.

Gelfand, D. E., Balcazar, H., Parzuchowski, J., & Lenox, S. (2004). Issues in hospice utilization by Mexicans. The Journal of Applied Gerontology, 23(1), 3-19.

Getrad, R., Choudhury, P. P., Brown, E., & Sheikh, A. (2003, October). Palliative care for Hindus. International Journal of Palliative Nursing, 9(10), 442-448.

Gray, A. J., Ezzart, A., et al. (1997). Palliative care for the terminally ill in Saudi Arabia. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Greiner, K. A., Perera, S., & Ahulwalia, J. S. (2003, July). Hospice usage by minorities in the last year from the national mortality followbacks survey. Journal of the American Geriatrics Society, 51(7), 970-978.

Gumley, V. A. (1997). The Russian approach to Hospice care. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Gunaratnam, Y. (1997). Culture is not enough: A critique of multi-culturalism in palliative care. In D. Field, J. Hockey, & N. Small (Eds.), Death, gender and ethnicity (pp. 166-186). London: Routledge.

Gunaratnam, Y. (2001, August). Eating into multiculturalism: Hospice staff and service users talk food, 'race', ethnicity, culture and identity. Critical Social Policy, 21, 3(68), 287-310.

Haber, D. (1999, January- February). Minority access to hospice. The American Journal of Hospice and Palliative Care, 16(1), 386-389.

Hallenbeck, J. L. (2004, June). Communication across cultures. Journal of Palliative Medicine, 7(3), 477-480.

Hammad, R. (1997). The Hospice experience in Jordan: Al-Malath Foundation for Humanistic Care. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Harper, B. C. (1995). Report from the National Task Force on Access to Hospice Care by Minority Groups. Hospice Journal, 10(2), 1-9.

Hartwig, K. (2001, Summer). The development of hospice care in Arusha, Tanzania: Lessons from the neighbouring states of Kenya and Uganda. Journal of Palliative Care, 17(2), 121-125.

Hosking, M., Whiting, G., Brathwate, C., et al. (2000, September). Cultural attitudes towards death and dying: A South African perspective. Palliative-Medicine, 14(5), 437-439.

Hospiceweb hotlinks. This site contains links to various Hospices sevices. Retrieved October 18, 2007, from http://www.hospiceweb.com/links.htm

Humphries, J. (2005). Hospice care in Romania. Pediatric Nursing, 17(9), 20-22.

Jackson, F., Schim, S. M., Seeley, S., Grunow, K., & Baker, J. (2000). Barriers to hospice care for African Americans: Problems and solutions. Journal of Hospice and Palliative Nursing, 2, 65-72.

Johnson, C. B. (1998). Hospice: What gets in the way of appropriate and timely access. Holistic Nurse Practitioner, 13, 8-21.

Jusic, A. (1997). Palliative medicine's first steps in Croatia. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Justice, C. (1995, Spring). The 'natural' death while not eating: A type of palliative care in Benaras, India. Journal of Palliative Care, 11(1), 38-42.

Kagawa-Singer, M., & Blackhall, L. J. (2001). Negotiating cross-cultural issues at the end of life: "You got to go where he lives". JAMA, 286, 2993-3001.

Kiik, R., & Sirotkina, R. (2006). Hospice- The ideology and perspectives in Estonia. International Nursing Review, 53(2), 136-142.

Lapine, A., Wang-Cheng, R., Goldstein, M., Nooney, A., Lamb, G., & Derse, A. R. (2001). When cultures clash: Physician, patient, and family wishes in truth disclosure for dying patients. Journal of Palliative Medicine, 4, 475-480.

Laungani, P. (2002). Hindi deaths and the use of hospices in the UK. International Journal of Health Promotions and Education, 40(4), 120-128.

Leavitt, M., Martinson, I. M., Liu, C., et al. (1999, April). Common themes and ethnic differences in family caregiving the first year after diagnosis of childhood cancer: Part II. Journal of Pediatric Nursing: Nursing Care of Children and Families, 14(2), 110-122.

Lundberg, G. D. (1994, January 26). Attitudes toward autopsy and organ donation in Sweden and the United States [Letter to the editor]. JAMA: The Journal of the American Medical Association, 271(4), 317.

Lyke, J., & Colon, M. (2004). Practical recommendations for ethnically and racially sensitive hospice services. American Journal of Hospice & Palliative Medicine, 21, 131-133.

Martinson, I. M., Leavitt, M., Liu, C., et al. (1999, April). Comparison of Chinese and Caucasian families caregiving to children with cancer at home: Part I. Journal of Pediatric Nursing: Nursing Care of Children and Families, 14(2), 99-109.

McElvaine, D. (1997). Zimbabwe: The island Hospice experience. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

McGrath, P., Vun, M., & McLeod, L. (2001). Needs and experiences of non-English speaking hospice patients and families in an English-speaking country. American Journal of Hospice and Palliative Care, 18, 305-312.

Michielutte, R., Sharp, P. C., et al. (1994). Cultural issues in the development of cancer control programs for American Indian populations. Journal of Health Care for the Poor & Underserved, 5(4), 280-296.

Minz, M., Sood, S., et al. (1998, November). Impact of organ trade on attitudes toward organ donation: Knowledge and attitudes toward cadaveric organ donation in north India. Transplantation Proceedings, 30(7), 3611.

Mokhovikov, A., & Donets, O. (1996). Suicide in the Ukraine: Epidemiology, knowledge, and attitudes of the population. Crisis, 17(3), 128-34.

NPHCO- National Hospice and Palliative Care Organization. NPHCO's mission is to lead and mobilize social change for improved care at the end of life. Retrieved August 13, 2004, from http://www.nhpco.org/templates/1/homepage.cfm

Neubauer, B. J., & Hamilton, C. L. (1990). Racial differences in attitudes toward hospice care. Hospice Journal, 6, 37-48.

Neubauer, J. (1998). Oxford textbook of palliative medicine. Oxford, UK: Oxford University Press.

Paton, L., & Wicks, M. (1996, July/August). The growth of the hospice movement in Japan. American Journal of Hospice and Palliative Care, 13, 26-31.

Pickett, M. (1993, April). Cultural awareness in the context of terminal illness. Cancer Nursing, 16(2), 102-106.

Radecki, C. M., & Jaccard, J. (1997, March). Psychological aspects of organ donation: A critical review and synthesis of individual and next-of-kin donation decisions. Health Psychology, 16(2), 183-195.

Ramsey, S. (2001, September 1). Raising the profile of palliative care for Africa. The Lancet, 358(9283), 734.

Rees, W. D. (1986). Immigrants and the hospice. Health Trends, 18(4), 89-91.

Reese, D. J., Ahern, R. E., Nair, S., et al. (1999). Hospice access and use by African-Americans: Addressing cultural and institutional barriers through participatory action research. Social Work, 44(6), 549-559.

Reese D. J., Melton E., & Ciaravino K. (2004). Programmatic barriers to providing culturally competent end-of-life care. American Journal of Hospice & Palliative Medicine, 21(5), 400-402.

Rosner, F. (1993, July/August). Hospice, medical ethics and Jewish customs. The American Journal of Hospice and Palliative Care, 10(4), 6-10.

Ross, M. M., Dunning, J., Edwards, N. (2001, Winter). Palliative care in China: Facilitating the process of development. Journal of Palliative Care, 17(4), 281-287.

Sakonji, M., Shimizu, C., et al. (1997). Hospice care in Japan. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Salmon, I. (2000, January). A British nurse's view of palliative care in Russia. International Journal of Palliative Nursing, 7(1), 37-43.

Saunders, C. & Kastenbaum, R. (Eds.). (1997). Hospice care on the international scene. New York: Springer.

Schim, S. M., Doorenbos, A. Z., & Borse, N. N. (September 2006). Cultural competence among hospice nurses. Journal of Hospice and Palliative Nursing, 8(5), 302-307.

Searight, H. R., & Gafford, J. (2005). Cultural diversity at the end of life: Issues and guidelines for family physicians. American Family Physician, 71, 515-522.

Smith, A. & Zhu, D. Z. (1997). Hospice development in China: Like green bamboo shoots in the spring. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Smith, L. (1997, Summer). Critical thinking, health policy, and the Hmong culture group, part II. Journal of Cultural Diversity, 4(2), 59-67, 69.

Spruyt, O. (1999). Community-based palliative care for Bangladeshi patients in east London: Accounts of bereaved carers. Palliative Medicine, 13, 119-129.

Talamantes, M. A., Lawler, W. R., & Espino, D. V. (1995). Hispanic American elders: Caregiving norms surrounding dying and the use of hospice services [Special issue]. Hospice Journal, 10(2), 35-49.

Vawter, D. E., & Babbitt, B. (1997). Hospice care for terminally ill Hmong patients. A good cultural fit? Minnesota Medicine, 80(11), 42-44.

Waller, A. (1997). Hospice and palliative care services in Israel. In D. C. Saunders & R. Kastenbaum (Eds.), Hospice care on the international scene. New York: Springer.

Wang C., & Chan S. M. A. (2005). Culturally tailored diabetes education program for Chinese Americans. Nursing Research, 54(5), 347-353.

Weber, M., Ochsmann, R., et al. (1998, Winter). Laying out and viewing the body at home--a forgotten tradition? Journal of Palliative Care, 14(4), 34-37.

Willis, J. (1999, December). Dying in country: Implications of culture in the delivery of palliative care in indigenous Australian communities. Anthropology and Medicine, 6(3), 423-435.

Zabalegui, Z. (2001, December). Palliative nursing care in Spain. European Journal of Cancer Care, 10(4), 280-283.

Zimring, S. D. (2001, September/October). Multi-cultural issues in advance directives. Journal of American Medical Directors Association, 2(5), 241-245.

Zurlinden, J. (2002, July 29). Barriers to hospice care for African-Americans. Nursing Spectrum (New England ed.), 6(15), 18-19.

 

 

 



©Jacquelyn Coughlan, November 2006 (82 citations)
 

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